Here is one we can all relate to … In my story, My Long Journey to Diagnosis, I explain just how traumatic my journey to diagnosis was. The medical gaslighting I experienced was horrifying! Some of the things told to me: There is nothing wrong with you (Seriously! I’m so happy but there IS something… Continue reading Everything you need to know about Medical Gaslighting
Hi there, My name is Roberta Distante, I’m a 38-year-old Italian PhD economist based in Copenhagen, Denmark. “Let’s observe symptoms and developments for some time. I would like to be cautious before diagnosing you with fibromyalgia; you’re too young” The look in her eyes was sincerely compassionate and worried. This is how one of the… Continue reading Story of Determination, Resistance, Strength, and Hope by Roberta Distante
Hi Everyone, I’m Emma, a 30, soon to be 31, year old Mumma and wife who lives with Fibromyalgia. I say lives with as it’s like the annoying hotel guest on holiday blaring the music in the room next to you or the one falling over the loungers at the pool because they are drunk.… Continue reading The Fibro Wife Painful & Proud by Emma Boyland
Fibromyalgia warrior, Prachi Sahney, suffers from Fibromyalgia. While Prachi is not yet ready to share her story, she has agreed to add her face to Faces of Fibromyalgia. I am so grateful that she has shared this, as each face added raises awareness. You can connect with Prachi by following her on Instagram.
It's a sad reality that people with Fibromyalgia often have to deal with judgement and criticism from their friends, family and the public at large. A lot of this is very cruel and hurtful. Education is key! If someone you know or love suffers from Fibromyalgia, you should really try and educate yourself as much as possible.… Continue reading Things NOT to say to someone with Fibromyalgia